Fontan

Wow, what a long three days. On Monday Colt had his cath. We had to be at Duke at 7am. They allowed us to go back with him until he fell asleep which was great. They called us every hour to give updates on how things were going. It did end up taking a little longer than planned because they had to coil, or block off some blood vessels that he didn't need. So now he has platinum in his veins! He did great and we all stayed together in the hospital Monday night. I was surprisingly calm and felt at peace about his surgery the next day. His nurse woke us at 5:30 on Tuesday to get him ready and we took him to pre-op at 6. We were supposed to also get hourly calls to update us, but I wouldn't call what we got updates. Then on hour three, we didn't get a call. So, you can imagine how we felt. I waited thirty minutes after we should have gotten the call and asked the admin to please try to find out what the problem was. So about five minutes later the OR nurse called and said "sorry I'm a little late but he's still in surgery." Ugh!! I was so mad. I mean, no $h*t lady! So from then on I let Drew take the calls so I wouldn't get too emotional, and I proceeded to get some pepto and drink most of the bottle while waiting for it to be over.

Finally we got the call that it was done and waited to talk with the surgeon. He said everything went smoothly with no complications. We did let him know about our "updates" and he said he would take care of it.

Most of yesterday and last night they kept Colt sedated but he would wake frequently very upset. So in the middle of the night they switched his meds and that helped tremendously. Drew and I stayed at the RMH to try an get some rest, which we did finally. Tonight I am staying with Colt since they have changed their policy and now one parent can spend the night, woohoo! Crisis averted, haha.

Going back to this morning, we got to the hospital at 7:45 to be here for rounds. Colt had been up since about 6 and boy was he mad at us! He didn't speak to us for over an hour. I swear he was mad because we left him alone. But finally he forgave us I guess. The day progressed and they removed his catheter, one chest tube, pacing wires and his IJ which is internal jugular, or an IV in his neck. They let him drink some water in the afternoon and he almost jumped off the bed to get to the cup. He guzzled a lot down and then ate some jello. Unfortunately it didn't stay with him long. He still hasn't been able to keep anything on his stomach. Hoping tomorrow will be better. Otherwise he is doing great! It has been a long sleepless night so far though. His roommate is very sick and has to have around the clock care and attention. So that means it's always loud and the lights are on :( I think his tummy is also upset since he hasn't pooped in three days. We both will doze off for about 10-15 minutes at the time. But the poor thing just can't stay asleep. I can imagine trying to sleep with the two chest tubes he still has is very difficult.

We can't begin to thank all of you for all of your love, support and prayers. They were most definitely heard and answered. Please continue to keep Colt in your prayers and that each day will be better than the last.

For some reason this crazy app isn't letting me upload any photos. I'll work on that for the next post.