Surgery and after

Surgery day went pretty well over all. We walked him down to pre-op around 6:15 am. He was so smart even though he was so hungry. It wasn't easy handing him over. We then went back to his room, showered and packed up. Then the waiting began. At around 8 we got our first call saying they had begun surgery and things were going well so far. We continued to get calls every hour on the half hour. They all said he was still in surgery and things were going according to schedule. At the 12:30 update they said we could expect it to last another couple hours. Then we got the 1:30 update. Then nothing until 3:30!! Then they called and said for us to meet surgeon in conference room of Pediatric Cardiac ICU. Finally alter another 15 minutes or so, the surgeon came in and said everything went as planned but he had a lot of bleeding. Otherwise things went great. Whew! A huge weight was lifted off both of us. We were able to see Colt about 30 minutes later.






He was pretty heavily sedated the next two to three days. He started acting more like himself Saturday but developed a high fever that night. We were pretty scared it may have been infection but after one dose of Tylenol it went away!











So Sunday afternoon he was his old self. Smiling and playing. Who would have thought the kid just had major heart surgery??






On Saturday he started with a milky discharge out of one of his chest tubes. It was more than likely from his feeds but they wanted to leave it in for observation. Finally Sunday night it didn't have hardly any drainage so they took it out Monday morning. They said they would just monitor him the rest of the day and he would go to step down the next morning. Well at 3am we get a phone call that scared us to death at first. They just wanted us to know they were moving him then because they needed his bed space and his step down room was ready. At 3am??? Guess hospital time is different from regular time. So drew went ahead to the hospital to stay with him and I stayed to clean and check out of RMH.

So we are just hanging out. Sharing our tiny cot. But it's worth it to be able to stay with him. The doctors are all very pleased with his recovery and we are basically just waiting for his lungs to get stronger so he can get off the oxygen. We are hoping to maybe be able to go home by the weekend!! Thanks so much for all your thoughts and prayers. Colt is a very strong boy and we are so blessed to be his parents.












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Cath day

5/1 11am
Well we are still waiting for them to come take colt back for the cath procedure. Been here since 9:15. It's now 11. Good thing we have a good baby. Somehow he hasnt started screaming of hunger yet. He's all decked out in his tiger gown and I just got him to sleep actually! Hopefully it won't be too much longer before they come.

Took him back at 1. Said would take at least 2 hrs. Called at 2 said they had started cath and everything was going smooth so far. Called at 2:30 said they were done! He did great everything looked like they thought it would.
He stayed in recovery for about an hour and a half or so. We are now in our own room. He's in a crib now so no room for a bed for one of us. We have the pull out chair thingy and an air mattress on the way. Not sure if we can get away with that but we are going to try :)

Colts doing well. Only needed Tylenol once so far. He's had 6 oz of pedialyte and only about one of milk. Hoping to get some more milk in him in a couple hours. I sure don't miss all the cords and wires attached to him. Or all the beeping on the monitors. Have any of you ever tried to entertain a 5 month old when you're confined to a crib?? Or how about rocking him to sleep??

We finally got him to sleep around 8, then they had someone come in at 9:45 to do an EKG which did not go well. Haven't they ever heard not to wake a sleeping baby?? Then they took him downstairs for an X-ray but Andrew was able to go with him. He drank about 3 ounces of milk afterwards and went to sleep around 11. He slept pretty soundly until 5:30. Andrew and I not so much. We only have the pull out chair to share. I told him tonight he's in the bath tub! It was a long day with many more to go. Very thankful it went as smoothly as it did. Praying the coming days do as well.